Dreaming Together of the Future of Patient-Oriented Research at the 2021 CHILD-BRIGHT Virtual Symposium

On Wednesday, May 26, health professionals, researchers, research staff, patient-partners, parent-partners, and family members came together for our 2021 CHILD-BRIGHT Virtual Symposium. A total of 192 participants from these different stakeholder groups attended our online event to explore the future of patient-oriented research (and brainstorm solutions to patient engagement issues) in the field of brain-based disability in children.

Nine CHILD-BRIGHT research teams kicked off the event with video updates to share  their accomplishments and hopes for their research moving forward.

Watch a recording of these project updates, along with the Q&A periods:

Following this lively session, participants were invited to “drop in” to virtual poster sessions organized along five major themes: Community-Engaged Research & Partnership, Clinical Research & Supports, Knowledge Translation & Exchange, Training & Capacity-Building, and COVID-19: Research & Virtual Care.

Participants also provided their perspectives in two brainstorming sessions throughout the day, offering input on two patient engagement issues:

  1. How to make consent and assent forms in child health research appropriate to an inclusive audience, and

  2. Strategies that the child health community can employ to better advocate for additional funding opportunities that will secure brighter futures.

Thank you to everyone who attended for the enriching and fruitful discussions. Stay tuned to hear more about the results of one of our brainstorming sessions in the coming weeks!

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