Working with our CCENT project as part of the 2021 CHILD-BRIGHT Summer Studentship Program, Clara Moore focused on data analysis and visualization and assisted with a meta-analysis of CCENT’s 16 measures administered over an 18-month period to capture outcomes such as stress, mental health, and experience of care delivery.
Here’s what Clara had to say about the summer student experience:
“I am extremely grateful that I was able to gain such valuable new skills through the CHILD-BRIGHT Summer Studentship Program. Not only did this experience firmly reinforce my passion for patient- and family-centered research, but it also taught me how to engage and collaborate with patients at all points of the research process.
The most important lesson that I took away from this summer was how to create meaningful and authentic partnerships with patients and families. As a researcher it is not enough to simply include a patient or family member as a “partner” on a project. Instead one must carefully consider how a patient-partner can best contribute to the project as an expert and ensure appropriate compensation for their time and knowledge.
As I move forward in my career as a physician, I hope to be able to engage in more patient-oriented research projects. When that day comes, I feel confident that I will be able to authentically include patients and families in each step of the research process and ensure that their expertise is valued in order to produce research that is meaningful and useful for the community of patients that it is intended to serve.”