When: Wednesday, May 24, 2023
Time: 11:00 a.m-12:00 p.m. ET / 10:00-11:00 a.m. CT / 8:00-9:00 a.m. PT

This event is now over but if you missed it, a recording is available below.

Learn about patient-oriented research (POR) at the CHILD-BRIGHT Network! CHILD-BRIGHT is an innovative pan-Canadian network that aims to improve life outcomes for children with brain-based developmental disabilities and their families. This webinar will provide an overview of an example of the way the parent-researcher partnership can evolve in a POR network. In this webinar presenters will discuss the collaborative process between parent-partners as co-investigators and researchers on a CHILD-BRIGHT research project.

Learning Objectives

• Learn about the process of parent-partners engaging as co-investigators in a childhood disability research project.

• Determine the key ingredients to engagement of patient-partners as investigators in childhood disability research

• Appreciate a researcher’s perspective in collaborating with a parent-partner investigator on a childhood disability research project.

Speakers

Carrie Costello is a parent of three wonderful children aged 15, 11 and 8 years old.  Her middle daughter, Alej, has a profound intellectual disability and a seizure disorder.  Her family has spent a lot of time navigating the child health and disability world; she brings that experience to her work with parents and families in research.  Carrie works as the parent liaison at the CHILD-BRIGHT Network and supports parents and researchers involved in 12 pan-Canadian multi-year research projects.  Carrie is also the patient engagement coordinator at the Children's Hospital Research Institute of Manitoba and works to include parents, caregivers and patients as part of the research team.  She has also been a partner, collaborator, co-investigator and co-primary investigator on over 10 different research projects.

Annette Majnemer is a Professor at the School of Physical & Occupational Therapy at McGill University, and a Senior Scientist at the Research Institute of the McGill University Health Centre. She is a Fellow of the Canadian Academy of Health Sciences and co-Editor of Physical & Occupational Therapy in Pediatrics. Annette Majnemer’s research interests focus primarily on early identification of children at high risk for disability and the intrinsic and extrinsic factors that influence outcomes in children and youth with developmental disabilities. She is also studying knowledge translation strategies that promote best practice for children with developmental challenges. She currently leads the CHILD-BRIGHT Network, a pan-Canadian patient-oriented research network (SPOR) focused on children with brain-based developmental disabilities.