This webinar is now over, but if you missed it, please feel free to watch the recording below.

Integration of research and clinical care is highly valued but is often difficult to achieve within the realities of a busy children’s hospital. A model for how this can be achieved is provided by the SPORT trial, a CHILD-BRIGHT multicenter study of non-invasive brain stimulation paired with intensive therapy for children with perinatal stroke and cerebral palsy. With presenters including a clinical therapist, post-doctoral fellow, and clinician scientist, the rationale, methods and early outcomes of this trial will be presented as an example of how such integration might succeed within Canadian pediatric centers.

When: Wednesday, September 12
Time: 11:00am-12:00pm EST 

Speakers:
Alicia Hilderley PhD
Megan Metzler OT
Adam Kirton MD

Adam Kirton MD MSc FRCPC
Dr. Kirton is Professor of Pediatrics, Radiology, and Clinical Neurosciences at the University of Calgary and an attending Pediatric Neurologist at the Alberta Children’s Hospital. His research focuses on applying technologies including non-invasive brain stimulation and neuroimaging to measure and modulate the response of the developing brain to early injury to generate new therapies. He is a clinician scientist and CIHR Foundation Grant Recipient. Dr. Kirton directs the Calgary Pediatric Stroke Program, Alberta Perinatal Stroke Project, ACH Pediatric Non-Invasive Brain Stimulation Laboratory and University of Calgary Noninvasive Neurostimulation Network (N3).

Alicia Hilderley PhD
Alicia is a postdoctoral research fellow with the Calgary Pediatric Stroke Program at the University of Calgary and Alberta Children’s Hospital, working with Dr. Adam Kirton. Her research interests include design and evaluation of pediatric movement interventions, and use of neuroimaging to investigate neural function, structure, and plasticity. Alicia’s doctoral training in Rehabilitation Sciences at the University of Toronto focused on motor learning and neuroplasticity in children with cerebral palsy. She is a Registered Kinesiologist (inactive status) and is actively involved in coaching community adapted sports.

Megan Metzler BScOT MSc
Megan Metzler is an occupational therapist research clinician at the Alberta Children’s Hospital. The role involves promoting integration of clinical best practices, treating children clinically, and supporting ongoing research trials. Her research interests include the efficacy of intensive motor therapies in combination with novel technology after perinatal stroke and the role of therapy for visual deficits arising from neurological injury.

This webinar is now over, but if you missed it, please feel free to watch the recording below or click here to see the entire summer series. 

As part of our 2018 Summer Learning Series, CHILD-BRIGHT’s Training program is hosting several free webinars that are open to anyone with an interest in learning more about Patient-Oriented Research (POR).

Join us for the fourth of these sessions:

When: Thursday, Aug. 9, 2018

Time: 10:30-11:30am PST / 1:30-2:30 EST

In this session we will showcase a current research project that values authentic patient engagement. Through exploring their journey, we will get a sense of how the process of patient engagement evolved throughout the process and how certain challenges were addressed.

Details will be finalized and registrants will be updated with any specifics.

Space is limited, so we ask that you RSVP here by July 19th, 2018. Your attendance and all requisite details will be confirmed by July 20th.

This webinar is now over, but if you missed it, please feel free to watch the recording below or click here to see the entire summer series. 

As part of our 2018 Summer Learning Series, CHILD-BRIGHT’s Training program is hosting several free webinars that are open to anyone with an interest in learning more about Patient-Oriented Research (POR).

Join us for the third of these sessions:

When: Thursday, July 26, 2018

Time: 10:30-11:30am PST / 1:30-2:30 EST

Building on the momentum of the previous two sessions, it is time to consider the practical aspects of patient engagement in the research process.  

In this session, we will explore:

• How researchers can move beyond involving patients as research subjects, but as research partners

• The different opportunities for patient engagement throughout each stage of the research. 

Space is limited, so we ask that you RSVP here by July 19th, 2018. Your attendance and all requisite details will be confirmed by July 20th.

This webinar is now over, but if you missed it, please feel free to watch the recording below or click here to see the entire summer series. 

As part of our 2018 Summer Learning Series, CHILD-BRIGHT’s Training program is hosting several free webinars that are open to anyone with an interest in learning more about Patient-Oriented Research (POR).

Join us for the second of these sessions:

When: Thursday, July 5, 2018

Time: 10:30-11:30am PST / 1:30-2:30 EST

In this session, we will explore:

• What authentic patient engagement looks like

• Some of the factors that influence patient engagement in the research process

• How patient engagement can positively impact the outcome(s) of health research.

Space is limited, so we ask that you RSVP here by June 28th, 2018. Your attendance and all requisite details will be confirmed by June 29th.

THIS WEBINAR HAS ALREADY TAKEN PLACE, BUT IF YOU MISSED IT, PLEASE FEEL FREE TO WATCH THE RECORDING BELOW.

Join us for this webinar, highlighting our work, hosted by CAPHC, as part of their CAPHC Presents! series.

Wednesday, June 20
11-12pm EDT

A coach or navigator approach is a new model that is now increasingly used in pediatric health care contexts. This webinar will provide an overview of what a coach is and the current evidence that exists in the use of a coach for parents of children with disabilities. Three research projects funded by CHILD-BRIGHT that use a coach model at three transition points in a child’s development will also be highlighted.

Speakers:
Maureen O'Donnell
Tatiana Ogourtsova
Annette Majnemer
Eyal Cohen

Tatiana Ogourtsova PhD, MSc, BSc OT (c), erg
Tatiana Ogourtsova is a Postdoctoral Fellow at the University of British Columbia (UBC), Department of Medicine, Pediatrics, mentored collaboratively by Dr. Maureen O’Donnell (UBC) and Dr. Annette Majnemer (McGill University) in the CHILD-BRIGHT’s Strategy for Patient Oriented Research. Tatiana is an Occupational Therapist, with several years of clinical experience at the McGill University Health Center – acute care (MUHC, Montreal, PQ). She completed her MSc and PhD in Rehabilitation Sciences at McGill University (Montreal, PQ) in the field of neurorehabilitation and knowledge translation.

Annette Majnemer  PhD, OT, FCAHS
Annette Majnemer is an occupational therapist with doctoral training in the neurosciences. She is a Professor at the School of Physical & Occupational Therapy  (SPOT) at McGill University, with cross appointments in the Departments of Neurology & Neurosurgery and Pediatrics. She is currently Vice Dean – Education for the Faculty of Medicine, McGill University, and is a Senior Scientist at the Research Institute of the McGill University Health Centre where she leads the CHILD-BRIGHT national SPOR Network. 

Eyal Cohen, MD, MSc, FRCP(C)
Dr. Eyal Cohen trained in pediatrics at the Hospital for Sick Children and Children's Hospital at Westmead in Sydney, Australia, completed an MSc in health research methodology at McMaster University in 2008.  Dr. Cohen co-founded the Complex Care Program in the Division of Pediatric Medicine at The Hospital for Sick Children where he is an Associate Scientist in the Research Institute.  He is an Associate Professor of Pediatrics at the University of Toronto with cross-appointments in the Institute of Health Policy, Management and Evaluation.  He is also a Scientist with the CanChild Centre for Childhood Disability Research at McMaster University.

Maureen O'Donnell MD MSc FRCPC
Dr. Maureen O'Donnell is the Executive Director of Child Health BC. A sub-specialist in Developmental Pediatrics, she has served as UBC Division Head, and has held provincial, national and international leadership roles related to her field. She holds a Master’s degree in clinical epidemiology and is an Associate Professor in the UBC Department of Pediatrics.  She served as Special Advisor to BC’s Deputy Minister of Health on CYSN for almost 5 years. Child Health BC is a network bringing together health system planners, administrators, policy makers and professional organizations from across BC and is an initiative of BC Children's Hospital.  

This webinar is now over, but if you missed it, please feel free to watch the recording below or click here to see the entire summer series. 

As part of our 2018 Summer Learning Series, CHILD-BRIGHT’s Training program is hosting several free webinars that are open to anyone with an interest in learning more about Patient-Oriented Research (POR).

Join us for the first of these sessions:

When: Thursday, June 7, 2018

Time: 10:30-11:30am PST / 1:30-2:30 EST

Knowledge generated  through health research rarely makes the leap from bench to bedside. Canada’s Strategy for Patient-Oriented Research (SPOR) is an initiative that hopes to address this discrepancy.

In this session, we will be exploring:

• How Canada’s SPOR is planning to improve health research so that it leads to high-quality & cost-effective care

• How CHILD-BRIGHT fits within the larger scope of Canada’s SPOR.

Space is limited, so we ask that you RSVP here by June 4th, 2018.

This event has now passed, but you can view a recording of this webinar here: 

Event hosted by the BC SUPPORT Unit

March 9, 2018

Noon to 1 p.m. (PST) / 3 to 4 p.m. (EST)

Join us for an update on the CHILD-BRIGHT Network. As one of Canada’s SPOR networks in chronic diseases, CHILD-BRIGHT aims to improve life outcomes for children with brain-based developmental disabilities and their families. During this webinar, hosted by the BC SUPPORT Unit, speakers Daniel Goldowitz, CHILD-BRIGHT Network Co-Director, and Pierre Zwiegers, CHILD-BRIGHT Training Coordinator, will present an overview of the network and its ongoing activities.

FREE ADMISSION

Seminar hosted by ComSanté, Centre de recherche sur la communication et la santé

Participation in sports and leisure activities is an important component of child development, but engagement of children with disabilities remains limited compared to children of the same age. Families and health professionals indicated that access to information on available resources is an essential factor facilitating participation. Families further expressed that a strong social support system improves children's participation in leisure. It is in this context that two researchers from McGill University created Jooay, a free mobile and web-based application offering a repository of adapted or inclusive leisure activities for children with disabilities available across Canada. Jooay is also an online support community allowing the exchange of advice and experiences. The research activities of this project are aimed at (1) mapping the patterns of Behavior Change among Jooay users; (2) identifying the best strategies for disseminating information about adapted leisure and (3) implementing and evaluating methods to optimize the use of this technology. The information gathered through the mobile application will also be used to inform policy and community change. 

Date : February 22nd 2018, from 12:30 PM to 1:45 PM
Speakers : Annette Majnemer, professor, McGill University; Keiko Shikako-Thomas, assistant professor, McGill University.
Building : UQAM's Pavillon Saint-Denis (AB), Montreal
Room: AB-7015

Free activity, but your registration is required.

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