This event is now over but if you missed it, please feel to watch the recording below

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To enhance the exchange of ideas between all our stakeholders, the CHILD-BRIGHT Network is happy to launch its Patient-Oriented research Discussions (PODs). In each of our four (free!) sessions, we will explore content related to patient engagement in research including interesting projects, resources, pieces of media, podcasts, webinars, research articles, or any other materials related to patient-oriented research. Each session will consist of a 60-minute exploration of the resources and topic identified by the host presenter, followed by an optional 30-minute networking opportunity. 

Join us to discuss our second topic.

When: Thursday, November 25, 2021
Time: 8:00 - 9:30 a.m. PT / 11:00 a.m. - 12:30 p.m. ET

In this session we will provide an overview of a select number of resources aimed at developing capacity in patient-oriented research (POR) and outline the benefits & drawbacks of each. Selected resources include:

POR Training Programs:

• Patient-Oriented Research Curriculum in Child Health (PORCCH)

• Family Engagement in Research Course (FER)

• Patient-Oriented Research Training and Learning – Primary Health Care Online Modules (PORTL-PHC)

• FYREworks (Family/Youth/Researcher Education)

• Partners in research Course(PiR)

POR Toolkits & Resources:

• Learning Together Simulations

• The Involvement Matrix

• Workbook to guide the development of a Patient Engagement In Research
  (PEIR) Plan

• SCPOR Patient-Oriented Research Level of Engagement Tool

• Methods of Patient & Public Engagement - A Guide

• Recommendations on Patient Engagement Compensation

• CHILD-BRIGHT: Guidelines for Patient-Partner Compensation

• CIHR Jargon Buster

The goal of the session is to highlight select resources that can be used to familiarize researchers and patient-partners to the basic elements of POR and promote authentic engagement within the research team. During the session, audience members will also be encouraged to share any specific POR capacity-development assets that they have found particularly useful in the context of their own work.

In addition to the resources featured above, the PODs team wanted to share a more extensive compilation of available resources with the broader community. Please find the linked spreadsheet here.  It is meant to be an editable resource with the intention to crowdsource additional tools, resources, and training programs that would be beneficial to POR teams.