This event is now over but if you missed it, a recording is available below.

To enhance the exchange of ideas between all our stakeholders, the CHILD-BRIGHT Network regularly hosts Patient-Oriented research Discussions (PODs). In each session, we discuss and explore content related to patient engagement in research. This can include interesting projects and resources, pieces of media, podcasts, webinars, research articles, or any other materials that involve patient-oriented research (POR). Each session is hosted by a presenter who picks the topic and resources for the session and drives open discussions with all attendees, allowing participants to jointly explore various issues and topics that relate to POR. Each session consists of a 60-minute exploration of the resources and topic identified by the host presenter, followed by an optional 30-minute networking opportunity.

Join us to discuss our fifth topic:

When: Wednesday, July 13, 2022
Time: 8:00 - 9:30 a.m. PT / 11:00 a.m. - 12:30 p.m. ET

End-to-end integration of patients as partners onto your research teams helps ensure that your questions, methods, and findings are meaningful, relevant, and implementable. Equitable compensation not only reduces barriers to contribution, but also reinforces the indispensable importance of incorporating the patient-partner’s lived experience throughout the research process. Join us as we explore some of the ethics of why fair compensation should always be offered and examine some practical strategies to help you overcome the inherent challenges to making payments possible.

Session objectives: 

1. Outline why providing compensation is important and explore some of the inherent challenges that have inhibited or may inhibit patient-partner compensation strategies  

2. Provide a brief overview of CHILD-BRIGHT’s suggested compensation guidelines

3. As a group, explore how certain challenges have been overcome and highlight possible systemic changes that would need to be implemented

Facilitators:

•    Kent Cadogan Loftsgard
•    Crystal Chin
•    Carrie Costello

This event is now over but if you missed it, please feel to watch the recording below

To enhance the exchange of ideas between all our stakeholders, the CHILD-BRIGHT Network is happy to launch its Patient-Oriented research Discussions (PODs). In each of our four (free!) sessions, we will explore content related to patient engagement in research including interesting projects, resources, pieces of media, podcasts, webinars, research articles, or any other materials related to patient-oriented research. Each session will consist of a 60-minute exploration of the resources and topic identified by the host presenter, followed by an optional 30-minute networking opportunity.

Join us to discuss our fourth topic.

When: Thursday, March 24, 2022
Time: 8:00 - 9:30 a.m. PST / 11:00 a.m. - 12:30 p.m. EST

Research suggests that simulation is a powerful tool that allows learners the opportunity to recreate challenging situations and to learn from these experiences in a safe and controlled setting.  

In this session we will use a simulated scenario to explore how expectations may differ between family/youth partners and other members of the research team around how, when and where research findings are shared. This situation was chosen because family partners may be eager to share and implement research findings with their peers and community, while researchers are often required to share findings through publications and formal presentations.  As teams co-develop knowledge translation strategies, the method of sharing information, the audience, and the timing should be discussed, acknowledged and agreed upon by all team members.  

Session objectives: 

1. Explore how to construct appropriate knowledge translation (dissemination of results) activities and products to ensure the priorities of everyone on the team are adequately addressed, while ensuring the integrity of the research process is upheld. 

2. Develop strategies to successfully navigate co-authorship discussions with family/youth partners. 

3. Reiterate the importance of having key discussions (goal of the study; expectations; limitations) at the beginning of the partnership to reduce confusion and disappointment. 

This event is now over but if you missed it, please feel to watch the recording below

To enhance the exchange of ideas between all our stakeholders, the CHILD-BRIGHT Network is happy to launch its Patient-Oriented research Discussions (PODs). In each of our four (free!) sessions, we will explore content related to patient engagement in research including interesting projects, resources, pieces of media, podcasts, webinars, research articles, or any other materials related to patient-oriented research. Each session will consist of a 60-minute exploration of the resources and topic identified by the host presenter, followed by an optional 30-minute networking opportunity. 

Join us to discuss our third topic:

When: Thursday, January 27, 2022
Time: 8:00 - 9:30 a.m. PT / 11:00 a.m. - 12:30 p.m. ET

The intent of patient-oriented research is to involve patient-partners in all phases of a research project. When it comes to data analysis and the interpretation of findings, patient-partners are less frequently engaged in the process. In this session we will adopt a co-learning approach and explore how to promote authentic patient participation in this area. After providing some context, participants will engage in a number of small-group discussions to further explore several key topics, which include:

• Whether engaging patient-partners in data analysis, interpretation of findings, or both, is worth doing and doable.

• The complementary roles and skills of researchers and patient partners

• How researchers and patient-partners can anticipate the time and iterative process required

References:

Cashman S.B., Adeky S., Allen A.J. 3rd, et al. The power and the promise: working with communities to analyze data, interpret findings, and get to outcomes. Am J Public Health. 2008 Aug;98(8):1407-17. https://doi.org/10.2105/AJPH.2007.113571

Domecq, J.P., Prutsky, G., Elraiyah, T. et al. Patient engagement in research: a systematic review. BMC Health Serv Res. 2014;14, 89. https://doi.org/10.1186/1472-6963-14-89 

Forsythe L.P., Ellis L.E., Edmundson L., et al. Patient and Stakeholder Engagement in the PCORI Pilot Projects: Description and Lessons Learned. J Gen Intern Med. 2016;31(1):13-21. https://doi.org/10.1007/s11606-015-3450-z

This event is now over but if you missed it, please feel to watch the recording below

To enhance the exchange of ideas between all our stakeholders, the CHILD-BRIGHT Network is happy to launch its Patient-Oriented research Discussions (PODs). In each of our four (free!) sessions, we will explore content related to patient engagement in research including interesting projects, resources, pieces of media, podcasts, webinars, research articles, or any other materials related to patient-oriented research. Each session will consist of a 60-minute exploration of the resources and topic identified by the host presenter, followed by an optional 30-minute networking opportunity. 

Join us to discuss our second topic.

When: Thursday, November 25, 2021
Time: 8:00 - 9:30 a.m. PT / 11:00 a.m. - 12:30 p.m. ET

In this session we will provide an overview of a select number of resources aimed at developing capacity in patient-oriented research (POR) and outline the benefits & drawbacks of each. Selected resources include:

POR Training Programs:

• Patient-Oriented Research Curriculum in Child Health (PORCCH)

• Family Engagement in Research Course (FER)

• Patient-Oriented Research Training and Learning – Primary Health Care Online Modules (PORTL-PHC)

• FYREworks (Family/Youth/Researcher Education)

• Partners in research Course(PiR)

POR Toolkits & Resources:

• Learning Together Simulations

• The Involvement Matrix

• Workbook to guide the development of a Patient Engagement In Research
  (PEIR) Plan

• SCPOR Patient-Oriented Research Level of Engagement Tool

• Methods of Patient & Public Engagement - A Guide

• Recommendations on Patient Engagement Compensation

• CHILD-BRIGHT: Guidelines for Patient-Partner Compensation

• CIHR Jargon Buster

The goal of the session is to highlight select resources that can be used to familiarize researchers and patient-partners to the basic elements of POR and promote authentic engagement within the research team. During the session, audience members will also be encouraged to share any specific POR capacity-development assets that they have found particularly useful in the context of their own work.

In addition to the resources featured above, the PODs team wanted to share a more extensive compilation of available resources with the broader community. Please find the linked spreadsheet here.  It is meant to be an editable resource with the intention to crowdsource additional tools, resources, and training programs that would be beneficial to POR teams.

This event is now over but if you missed it, please feel free to watch the recording below

To enhance the exchange of ideas between all our stakeholders, the CHILD-BRIGHT Network is happy to launch its Patient-Oriented research Discussions (PODs). In each of our four (free!) sessions, we will explore content related to patient engagement in research including interesting projects, resources, pieces of media, podcasts, webinars, research articles, or any other materials related to patient-oriented research. Each session will consist of a 60-minute exploration of the resources and topic identified by the host presenter, followed by an optional 30-minute networking opportunity. 

Join us to discuss our first topic.

When: Thursday, September 23, 2021
Time: 8:00 - 9:30 a.m. PT / 11:00 a.m. - 12:30 p.m. ET

Patient engagement throughout the research process takes effort and time. Incorporating a POR perspective in a graduate-student led project presents unique challenges that can be addressed by employing high-level strategies that promote stakeholder buy-in. During this session we will outline various approaches that can set the stage for productive and authentic engagement.