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CHILD-BRIGHT Network Patient-Oriented Research Discussions: How to Integrate the Patient Perspective in Data Analysis

This event is now over but if you missed it, please feel to watch the recording below

To enhance the exchange of ideas between all our stakeholders, the CHILD-BRIGHT Network is happy to launch its Patient-Oriented research Discussions (PODs). In each of our four (free!) sessions, we will explore content related to patient engagement in research including interesting projects, resources, pieces of media, podcasts, webinars, research articles, or any other materials related to patient-oriented research. Each session will consist of a 60-minute exploration of the resources and topic identified by the host presenter, followed by an optional 30-minute networking opportunity. 

Join us to discuss our third topic:

Topic 3 PODs.jpg

When: Thursday, January 27, 2022
Time: 8:00 - 9:30 a.m. PT / 11:00 a.m. - 12:30 p.m. ET

The intent of patient-oriented research is to involve patient-partners in all phases of a research project. When it comes to data analysis and the interpretation of findings, patient-partners are less frequently engaged in the process. In this session we will adopt a co-learning approach and explore how to promote authentic patient participation in this area. After providing some context, participants will engage in a number of small-group discussions to further explore several key topics, which include:

  • Whether engaging patient-partners in data analysis, interpretation of findings, or both, is worth doing and doable.

  • The complementary roles and skills of researchers and patient partners

  • How researchers and patient-partners can anticipate the time and iterative process required

References:

Cashman S.B., Adeky S., Allen A.J. 3rd, et al. The power and the promise: working with communities to analyze data, interpret findings, and get to outcomes. Am J Public Health. 2008 Aug;98(8):1407-17. https://doi.org/10.2105/AJPH.2007.113571

Domecq, J.P., Prutsky, G., Elraiyah, T. et al. Patient engagement in research: a systematic review. BMC Health Serv Res. 2014;14, 89. https://doi.org/10.1186/1472-6963-14-89 

Forsythe L.P., Ellis L.E., Edmundson L., et al. Patient and Stakeholder Engagement in the PCORI Pilot Projects: Description and Lessons Learned. J Gen Intern Med. 2016;31(1):13-21. https://doi.org/10.1007/s11606-015-3450-z

Earlier Event: January 26
Telerehabilitation for children and youth with disabilities: Evidence and perspectives
Later Event: February 23
Life Beyond Trauma Program for Parents of Neurodiverse Children with Post-traumatic Stress Disorder

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The CHILD-BRIGHT Network is supported by the Canadian Institutes of Health Research (CIHR) under Canada’s Strategy for Patient-Oriented Research (SPOR) Initiative.

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