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In an era where data is the new gold, the importance of protecting Indigenous data sovereignty has never been more critical. Join Marlyn Bennett, an Anishinaabe interdisciplinary researcher and Co-Lead of CHILD-BRIGHT’s Equity, Diversity, Inclusion, Indigenization and Decolonization (EDI-DI) Program on November 14 at 1 p.m. ET/10 a.m. PT as she delves into the profound significance of safeguarding Indigenous knowledge and data in health research.

This talk will explore the historical and cultural contexts that underscore the need for Indigenous control over data, the challenges faced in the fight for sovereignty, and the ways in which Indigenous communities are reclaiming their narratives through data governance. 

Marlyn Bennett will share insights into the ethical considerations, best practices, and collaborative efforts essential for protecting sacred Indigenous knowledge. Attendees will gain a deeper understanding of the pivotal role that data sovereignty plays in empowering Indigenous communities, preserving cultural heritage, and ensuring that data is used in ways that respect Indigenous values and traditions. 

This talk is a call to action for researchers, policymakers, and community members to support and advocate for Indigenous data sovereignty, recognizing it as a vital component of Indigenous rights and self-determination.

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Network members learned a lot in the move from Phase 1, which was focused on producing research and outcomes, to Phase 2, which is all about implementation in the real world. On Oct. 18 from 1 p.m. - 2:30 pm EDT / 10 a.m. – 11:30 a.m. PDT, join the discussion about how we moved forward and shifted our focus to having an impact on practice and policy.

Moderators: 

• Janet Curran, CHILD-BRIGHT Implementation Science Research Program Co-Lead

• Simonne Collins, Postdoctoral Fellow, CHILD-BRIGHT Implementation Science Research Program

Panelists:

• Lucy Lach, Co-Principal Investigator, CHILD-BRIGHT Bridging the Gap from Science to Uptake research project

• Sharon McCarry, Partner with Lived and Living Experience, CHILD-BRIGHT Bridging the Gap from Science to Uptake research project

• Marie-Ève Bolduc, Postdoctoral Fellow, CHILD-BRIGHT Care Pathways for CHD research project

• Kelvin Lee, Trainee, CHILD-BRIGHT Care Pathways for CHD research project

• Jamie-Lynn Hunt, Partner with Lived and Living Experience, CHILD-BRIGHT Care Pathways for CHD research project

• Sharon Hou, Postdoctoral Fellow, CHILD-BRIGHT Pain Pathways research project

• Laesa Kim, Family Liaison, CHILD-BRIGHT Pain Pathways research project

• Jennifer Crosbie, Principal Investigator, CHILD-BRIGHT VR-EF research project

• Gunjan Seth, Partner with Lived and Living Experience, CHILD-BRIGHT VR-EF research project

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Curious to hear about the different roles partners with lived and living experience (PWLEs) have in our Phase 2 Projects? On Oct. 9 from 11 a.m.- 12:30 pm EDT / 8 a.m. – 9:30 a.m. PDT, join us to learn how PWLE engagement has evolved at CHILD-BRIGHT while continuing to enhance patient-oriented approaches to child health research and knowledge mobilization practices.

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On Sept. 20 from 1 p.m. - 2:30 pm EDT / 10 – 11:30 a.m. PDT, join us to learn more about CHILD-BRIGHT’s plans for the future, including activities led by the network’s executive committee, and how projects and programs are thinking of their own longevity. This panel will highlight training initiatives in patient-oriented research, strategies to scale up operations, and relationship building that promotes our network’s long-term success.

Speaker:

• Annette Majnemer, CHILD-BRIGHT Nominated Principal Investigator and Scientific Co-Director

Panelists:

• Mathias Castaldo, CHILD-BRIGHT National Youth Advocacy Council member

• Steven Miller, CHILD-BRIGHT Scientific Co-Director,  Principal Investigator & Implementation Science Research Program Co-Lead

• Linda Nguyen, CHILD-BRIGHT Training and Capacity Building Committee Member and Knowledge Mobilization Committee Member

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Join members of the CHILD-BRIGHT National Youth Advocacy Council on Aug. 19 at 1 p.m. ET/10 a.m. PT as they explore the crucial importance of including people with disabilities in health research focused on equity, diversity, inclusion, decolonizatio, and Indigenization (EDI-DI). They will define key concepts such as tokenism, infantilization, and non-inclusive environments, leading to a discussion of why inclusion is essential and an overview of elements of inclusive research practice.

LEARNING OBJECTIVES

• Understanding the principles and benefits of inclusive research practices.

• Learning how to design research projects that include people with disabilities as critical partners.

• Defining key concepts of EDI-DI in health research.

• Exploring the ethical, social, and practical importance of inclusion for people with disabilities in the context of health research.

• Examining why the concept of inclusion is often an afterthought for people with disabilities in EDI-DI-focused health research.

This session aims to create an understanding of inclusive research practices and foster a more equitable and respectful approach to health research. Join us to learn how to make your research more inclusive and impactful!

FACILITATORS

• Tommy Akinnawonu, CHILD-BRIGHT National Youth Advocacy Council member

• Kelsey Seguin, CHILD-BRIGHT National Youth Advocacy Council member

• Logan Wong, CHILD-BRIGHT National Youth Advocacy Council member

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Join us on Aug. 12 at 12 p.m. ET/ 9 a.m. PT as the Critical Ethical Engagement with YOUth! (CEE YOU!) project team, recipients of a 2022 Training Innovation Fund award, presents its integrated Knowledge Translation project to develop guidelines for partnering with young people with disabilities in research.

In this project, CHILD-BRIGHT National Youth Advocacy Council members and two postdoctoral trainees co-developed Knowledge Mobilization materials to help researchers understand youth partners’ experiences and perspectives in research engagement.

The team will also share research findings and insights to support research teams when developing research partnerships with youth with neurodevelopmental disabilities.

The audience will have an opportunity to hear the firsthand experiences and reflective analytical process employed in this project from the two youth co-researchers as well as postdoctoral research trainees. A discussion period will follow the panel presentation. 

Facilitators:

• Sakiko Yamaguchi, Postdoctoral Fellow, CHILD-BRIGHT Knowledge Mobilization Program

• Linda Nguyen, Postdoctoral Fellow, CHILD-BRIGHT Knowledge Mobilization Program

• Mathias Castaldo, National Youth Advocacy Council member

• Shafniya Kanagaratnam, National Youth Advocacy Council member

• Keiko Shikako, Co-Lead, CHILD-BRIGHT Knowledge Mobilization Program & Principal Investigator, Jooay App project

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"There’s a very direct link here between workforce shortages and the quality of care we’re able to provide… We’ve all been very clear that we simply cannot run the NHS effectively or efficiently unless we have a long-term workforce plan." – Chris Hopson, NHS Chief Executive

In the post-pandemic era, deficit thinking like this continues to dominate. But what if there was a different way to approach the challenges facing our health care system?

Imagine transforming these challenges into opportunities by shifting from deficit thinking to a strength-based approach. The Strengths-Based Nursing and Health care (SBNH) leadership framework empowers health care leaders to see beyond limitations and focus on strengths. SBNH values include systems thinking, uniqueness, health and healing, multiple perspectives, self-determination, goodness-of-fit, timing, readiness, and collaborative partnerships.

Join the CHILD-BRIGHT Network Knowledge Mobilization Clinician Hub for a webinar to discover how the SBNH framework can be applied to real-life health care situations. Learn practical strategies to enhance your leadership, improve patient care, and cultivate a more resilient health care environment.

Investing in your development and mindset as a health care leader is essential to prevent burnout and foster a thriving workplace. Let SBNH thinking guide your actions and transform your leadership approach.

Learning Objectives

The typical audience for these webinars is interested in learning about the Strength-Based Nursing and Health Care framework for solving problems in a variety of patient-care settings. Participants can expect:

• Clear definitions of the values in the Strengths-Based Nursing and Health Care Leadership Value Wheel

• An introduction to the Spiralling Process

• A fun application of the framework to a children’s story

• A case study for further application and working out the concepts

• The first steps to think about problems in your own practice setting and where the SBNH-L values can be helpful

Speaker

Erin Vandeven (she/her) is the Associate Chief of Nursing Practice at the Hospital for Sick Children. Erin is an award-winning change leader who helps individuals, teams and systems implement tools and leverage behaviours that elevate the nursing profession, improve patient safety, and enhance family-centred care.  

Erin first joined SickKids as a Registered Nurse in Neuroscience and Trauma in 2006. She held a variety of positions in professional practice, education and clinical operations before moving into her current role as Associate Chief of Nursing Practice in 2021.  

Erin's philosophy of leadership is to build and sustain environments and cultures where practice excellence can thrive. Managing change is an ongoing and evolving opportunity, rather than a one-time event. Erin's strengths include her creation of safe spaces for an evolving nursing workforce, her ability to make the theoretical practical, and her willingness to role-model mindful presence and openness to change.  

 In addition to her professional practice, Erin is on a personal quest to bake the perfect chocolate chip cookie. Erin holds a Bachelor of Nursing Science and a Master of Nursing, both from the University of Toronto. 

When: Wednesday, February 21, 2024
Time: 11:00 a.m.-12:00 p.m. ET / 8:00-9:00 a.m. PT / 10:00-11:00 a.m. CT

Resources for pre-teens on sexuality and disability are lacking. This webinar, organized jointly with Children’s Healthcare Canada, will share the development of an innovative new book, Becoming You: Exploring sexuality and disability for pre-teens, co-created with youth, parents and health care providers. Using inclusive graphics and youth-friendly language, this free digital book supports nonjudgmental conversations on disability, sexuality, and identity. A multi-pronged dissemination approach included social media, conferences, and community partners. The book is available on the Let's Talk Disability and Sex online hub, which provides evidence-informed multi-modal resources for youth, parents, and health care providers. Since March 2023, the book has received 593 views.

LEARNING OBJECTIVES 

Following this webinar, participants will be able to do the following:

• Understand the importance of needs-based, evidence-informed resources

• Describe the process for co-creating the book about sexuality and identity to meet the needs of pre-teens with disabilities

• Appreciate the complexities of virtual co-creation with youth, parents, researchers, health care providers, and educators 

SPEAKERS