We are proud to announce the winner of the CHILD-BRIGHT ConneKT Fund, which provides funding of up to $5,000 to CHILD-BRIGHT research teams to help them finance knowledge translation events or products that increase engagement with community partners, achieve meaningful stakeholder participation, and build positive relationships between stakeholders and project members.
Project:
Diagnosis Using Integrated Metabolomics And Genomics In Neurodevelopment (IMAGINE)
Leads
Funding amount granted:
$5,000
Project summary:
Families express feeling abandoned and lost after receiving genomic sequencing results. To address this gap in care, three parent-partners worked with us to develop a customizable e-booklet. This illustrated resource describes genomic results in simple but accurate terms, and provides next steps and support, specific to each family. Having all relevant information in one place helps parents to “quarterback” their healthcare. But this approach is fundamentally inequitable: English-speaking parents benefit, but other language-speakers cannot access it. ConneKT funds will enable us to translate and evaluate this resource in two non-English languages. This pilot project has the ultimate goal of creating multiple versions for wider usage and e-support.
CONGRATULATIONS!
Are you a CHILD-BRIGHT research project with a knowledge translation idea to increase engagement with community partners? Applications for our ConneKT fund are ongoing! For more information and to apply, contact alix-zerbo@child-bright.ca