CHILD-BRIGHT Network 2023 Conference Posters

CHILD-BRIGHT Network Programs

The CHILD-BRIGHT Network Knowledge Mobilization Program
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The CHILD-BRIGHT Network Implementation Science Research Program
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The CHILD-BRIGHT Network Engagement Program
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The CHILD-BRIGHT Network Equity, Diversity, Inclusion, Decolonization & Indigenization (EDI-DI) Program
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The CHILD-BRIGHT Network Training & Capacity Building Program
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CHILD-BRIGHT Network Research Projects

Safety and Feasibility of Continuous Maternal Supplemental Oxygen in Fetuses with Single Ventricles: Preliminary Findings
Presenter: K Lee
Authors: Fu-Tsuen (Kelvin) Lee, Liqun Sun, Joshua van Amerom, Adrienn Szabo, Natasha Milligan, Amandeep Saini, Alan Cooper, Lindsay Freud, Edgar Jaeggi, Tim Van Mieghem, John Kingdom, Steven Miller, Mike Seed
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A Re-Design of Metformin for Motor & Cognitive Improvement in Children with Cerebral Palsy: A Feasibility Study
Presenters: Cadogan Loftsgard K, Geboers J, de Medeiros C, Switzer L
Authors: Fehlings D, Mabbott D, Cadogan Loftsgard K, de Medeiros C, Geboers J, Switzer L
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Stimulation for Perinatal Stroke: Optimizing Recovery Trajectories The SPORT trial
Authors: Hilderley A, Dunbar M, Andersen J, Fehlings D, Metzler M, Carlson H, Zewdie E, Hodge J, Floer A, O'Grady K, Carsolio L, Dlamini N, Giuffre A, Cole L, Kuo HC, Bourgeois A, Hollis A, Maiani M, Ciechanski P, Jadavji Z, Craig B, Kelly D, Keough J, Wrightson J, Fay L, Switzer L, Batara J, Yaskina M, Hill MD, Kirton A
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Interplay
Presenters: Sandra Reist, Mia Herrero, Liz Cambridge, Eleanor Leverington, Divya Vurrabindi, Alicia Hilderley
Authors: Hilderley A, Vurrabindi D, Cassidy C, Chai J, McCoy S, Reist S, Tao C, Tao S, Cambridge L, Herrero M, O’Grady K, Leverington E, Micek V, Andersen J, Fehlings D, Kirton A
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Optimizing the Management of Pain and Irritability in Children with Severe Neurological Impairment: Phase I
Presenter: Edlyn Lim
Authors: Edlyn Lim, Hal Siden, Tammie Dewan, Vithya Gnanakumar, Julia Orkin, Anamaria Richardson, Christina Vadeboncoeur, Liisa Holsti, Tim Oberlander, Gail Andrews
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Pain and Symptoms in Children with Neurological Impairment: The Background of PIUO Phase 2
Presenters: Michael Potts, Harold Siden, Susan Cadell, Betty Davies, Rose Steele, Gail Andrews
Authors: Michael Potts, Gail Andrews
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Strongest Families Neurodevelopmental Project Update: The Power of Partnership
Presenter: Karen McEwan
Authors: Elisa Kaltenbach, Lucyna Lach, Jeanine Lebsack, Karen McEwan, Patrick McGrath, Donna Thomson, Ting Xiong
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Jooay App; Promoting Participation in Leisure for Children and Youth with Disabilities
Presenters: Keiko Shikako, Mehrnoosh Movahed
Authors: Mehrnoosh Movahed, Ebrahim Mahmoudi Kojidi, Annette Majnemer, Carlos Denner, Stephanie Glegg, Tiiu Poldma, Janet McCabe, Michelle McClure, Dave Sora, Rachel Martens, Lesley Wiart, Jess Silver, Melanie Bergthorson, Nick Katalifos, Joanne Charron, Marla Cable, Gillian Backlin, Keiko Shikako
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Cognitive Rehabilitation (MegaTeam) and its Effects on Emotional and Behavioural Regulation in ADHD and Autistic Children: A Randomized Controlled Trial
Authors: Cheung TCK,  Dhaliwal N, Arshad T, Anagnostou E, Ameis S, Sananes R, Bedard AC, Crosbie, J
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Coached, Coordinated, Enhanced Neonatal Transition (CCENT)
Authors: Natasha Bruno, Kayla Esser, Blossom Dharmaraj, Noah Zweig, Eyal Cohen, Nathalie Major, Paige Church, Emily Kieran, Anne Synnes, EstherLee, Hema Patel, Elise Couture, Karel O’Brien, Linh Ly, Thierry Daboval, Kate Robson, Fabiana Bacchini, Julie Rose, Julia Orkin
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CHILD-BRIGHT Coaching: Moving Toward Implementation of a Virtual Coaching Program for Caregivers of Young Children with Suspected Developmental Delays
Authors: Annette Majnemer, Kristy Wittmeier, André Bussières, Jillian Filliter, Maureen O’Donnell, Carrie Costello, BRIGHT Coaching Co-Investigators, and BRIGHT Coaching Parent Advisory Group
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The Evolution of our Partnership with Youth and Families on the CHILD-BRIGHT READYorNot™ Brain-Based Disabilities Project: Key Reflections and Lessons Learned
Authors: Linda Nguyen, Kinga Pozniak, Sonya Strohm, Claire Dawe-McCord, Jessica Havens, Donna Thomson, Connie Putterman, Dana Arafeh, Barb Galuppi, Alicia Via-Dufresne Ley, Shelley Doucet, Khush Amaria, Adrienne Kovacs, Ariane Marelli, Ronen Rozenblum & Jan Willem Gorter on behalf of the READYorNot™ Brain-Based Disabilities Project
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IMAGINE Study: A Single Gene Disorder is Identified in Half of Children with Complex Presentations that Include Cerebral Palsy
Authors: Colleen Guimond, Patricia Birch, Madeline Couse, Isabel Jordan, Brenda Lenahan, Anna Lehman, Jill Mwenifumbo, Kelsey Ohs, Clara van Karnebeek, Jan Friedman
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Identifying Social Economic Inequities amongst the Pediatric Disabilities Population: Leveraging Hospital Based Funding Programs
Presenters: Addy Budin, Cheryl Peters
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The Relationship between National Child Health Research Funding and Pediatric Health Outcomes in Canada
Authors: Analyssa Cardenas, Christine Chambers, Sarah De La Rue, Jennifer Parker, Noni MacDonald, Ruth Warre, Isabel Jordan, Jessica Savoie, Brittany Cormier, Alexandria Martin, Malvina Chhina
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Co-Development of the Family Engagement in Research Leadership Academy: An Advanced Training Opportunity to Support Emerging Leaders in Child Health Research 
Authors: Micsinszki S, Thomson D, Putterman C, Martens R, Soper AK, McCauley D, Phoenix M, Gorter JW, Cross A
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The Impact of COVID-19 on Recruitment for a Pediatric Network Study
Presenters: Isobel Fishman, Suzanne Henderson
Authors: Isobel Fishman, Suzanne Henderson, Christina Vadeboncoeur
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Navigating Virtual Care During COVID-19: Perspectives of Parents of Children with Medical Complexity
Presenter: Vanessa C. Fong
Authors: Vanessa Fong , Jennifer Baumbusch, Koushambhi Khan
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Passerelle: A National Hub in Capacity Development for Patient-oriented Research
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Knowledge Translation Strategies to Promote Evidence-based Rehabilitation for Children with Cerebral Palsy: A Scoping Review
Presenter: Jessica Hanson
Authors: Jessica Hanson, Akash Sasitharan, Tatiana Ogourtsova, Annette Majnemer
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POR in Practice: Creating a Journal Club for Parents of Medically Complex Children
Authors: Anne-Mette Hermansen, Laesa Kim
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Home-based Early Intensive Hemiparesis Therapy: Engaging Nurture
Authors: Hilderley A, Herrero M, O’Grady K, Leverington E, Micek V, Diot C, Reist S, Pynn R, Tao C, Tao S, Andersen J, Kirton A
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Early Impact of Robotic Gait Training in Children with Neurological Disorder - A Case Study
Presenter: Kiran Isapure
Authors: Kiran Isapure, Jina Seok, Benjamin Norman, Elizabeth G. Condliffe
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Exploring the Impacts of COVID-19 Public Health Measures on Children with Complex Care Needs and their Families in the Maritimes
Authors: Catie Johnson, Jennifer Lane, Julie Clegg, Holly McCulloch, Ijeoma Staunton, Mwalu Peeters, Janet Curran
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Coping with the COVID-19 Pandemic in Canada: Barriers and Facilitators as Reported by Caregivers of Youth with Developmental Delays and Disabilities
Presenter: Anna Katalifos
Authors: Anna Katalifos, Afiqah Yusuf, Sakiko Yamaguchi, Nicola Wright, Mandy Steiman, Miriam Gonzalez, Andy Shih, Keiko Shikako, Mayada Elsabbagh
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Exploring What Motivates Parents of Children Living with Medical Complexity to Participate in Research Studies: An Interpretive Phenomenology Study
Presenter: Laesa Kim
Authors: Laesa Kim, Hal Siden, Karen Cook, Anne-Mette Hermansen
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A Scoping Review on the Use of Gamification in Mobile Applications for Children with  Disabilities: Trends and Future Directions
Presenter: Ebrahim Mahmoudi
Authors: Ebrahim Mahmoudi, Paul Yoo, Ananya Chandra, Roberta Cardoso, Carlos Denner, Annette Majnemer, Keiko Shikako, the Jooay Research Team
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Demands and Resources in Family and Work Domains: Exploring Well-being of Employed and Non-employed Parents of Children with Neurodevelopmental Disabilities
Presenter: Karen McEwan
Authors: Karen Turner, Arla Day, Patrick McGrath
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“We Are Made of Tough Stuff”: Identifying the Service Needs and Priorities of Newcomer Families of Autistic Children
Presenter: Janet McLaughlin
Authors: Janet McLaughlin, Vanessa Fong, Margaret Schneider
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Leadership Competencies in Family Engagement in Research
Authors: Micsinszki S, Thomson D, Putterman C, Martens R, Soper AK, McCauley D, Phoenix M, Forster VJ, Gorter JW, Cross A
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Feasibility and Acceptability of a Virtual Reality Intervention for Children and Youth with Neurodevelopmental Disorders: Results from a Pilot Study
Authors: Mora D, Cheung TCK, Dhaliwal N, Bedard AC, Schachar R, Crosbie, J
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Moving Forward: Mobilizing Knowledge to Co-Develop the Siblings Training, Empowerment, and Advocacy Kit (Siblings TEAKit) to Support Siblings of Individuals with a Disability
Authors: Linda Nguyen, Samantha Bellefeuille, Hanae Davis, Jan Willem Gorter, Marjolijn Ketelaar, Jennifer Zwicker, Keiko Shikako
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Co-designing Solutions to Enhance Families’ Experiences with Telerehabilitation – Findings and Reflections
Presenters: Meaghan Reitzel, Cynthia Lennon
Authors: Meaghan Reitzel, Monika Novak Pavlic, Jennifer Lasenby-Lessard, Chantal Camden, Briano Di Rezze, Lori Letts, Cynthia Lennon, Brendan Wylie-Toal, Michelle Phoenix
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A Cost Effectiveness Analysis of Mega Team for Cognitive Rehabilitation in ADHD
Authors: Roaa Shoukry, Jennifer Crosbie, Taha Arshad, Navi Dhaliwal, Evdokia Anagnostou, Stephanie Ameis, Renée Sananes, Anne-Claude Bedard, Jennifer Zwicker, Myla Moretti, Wendy Ungar
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Vocational Needs of Chinese Autistic Youth and Young adults in Ontario: A Preliminary Qualitative Study
Authors: Jeremiah So, Hei Lam Cheng, Ashtyn Chau, Huberta Chan, Hogan Lam, Jackie Seto, Hayden Wong, Yvonne Leung, Anna Victoria Wong, Theodore C.K. Cheung
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Cost Effectiveness Analysis of the Strongest Families Neurodevelopmental Program
Presenter: Aranie Vijayaratnam
Authors: Aranie Vijayaratnam, Myla Moretti, Jennifer Zwicker, Karen McEwan, Lucy Lach, Patrick McGrath, Wendy J. Ungar
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Correlates of Mental Health Problems among Parents of Children with Neurodevelopmental Disabilities: A Systematic Review and Meta-analysis
Presenter: Sydney Walker
Authors: Walker S, McEwan K, Agyare A, Xiong T, McGrath P
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Our Journey, Our Stories
Authors: Hayley Wroot , Diana Salcedo, Aaron Ooi , Anamaria Richardson
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Progress and Goals for the Critical, Ethical Engagement with Youth (CEE YOU)! Project
Authors: Sakiko Yamaguchi, Mathias Castaldo, Shafniya Kanagaratnam, Linda Nguyen, Keiko Shikako
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Characteristics and Processes to Develop Lay Summaries of Healthcare Evidence: A Scoping Review and Consultation Exercise
Authors: Sareh Zarshenas, JoAnne Mosel, Hardeep Singh, Adora Chui, Samantha Seaton, Sandra Moroz, Tayaba Khan, Sherrie Logan, Heather Colquhoun
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